We feel like we’re in fast-forward …
Overall, Ruben is doing really well … but lordy. recovering from heart surgery is not easy.
Ruben was extubated yesterday evening, and remained extubated through the night (though on some extra breathing support – cpap, as you may recall). He was really uncomfortable with pain and hunger through the night …. didn’t get much sleep (Sam was here with him for the 2nd night in a row.)
This morning on rounds, despite some concerns about the depths of his breaths, he was taken off cpap and now has only a nasal cannula for breathing support (less support). They moved ahead with this so that he can eat (they couldn’t let him eat on cpap).
He is doing well on the nasal cannula – so a few minutes ago – he had a bottle! Now he’s sleeping ….
btw – we’re now in the same room that Ruben was in our first time in the PICU – only this time, Ruben is in the bed that his old friend Big Ruben was in in November (remember him? we miss him!). One of our roommates this time was a little 5 year old boy who was super unhappy. Last night he was really loud/uncomfortable (wailing) while Ruben was trying to get his breath, so eventually, the doctors actually moved the other boy. We hope his new spot is comfortable, and more importantly, that he’s feeling better. Now we have one roommate – a very sweet 14 year old boy recovering from brain surgery. He came out of surgery yesterday and might go home today! These kids are amazing.
here’s Ruben with his jackhammer earmuffs that we got him today (despite appearances, they seem comfortable)
and – though Ruben doesn’t need your peeing help this time, feel free to cough with gusto (if you need to) – his lungs are congested and his project now is to clear them out